Showing posts with label health. Show all posts
Showing posts with label health. Show all posts

Sunday, June 08, 2008

del.icio.us tags: moms

Revolution Health, which The Washington Post reported will be doing an additional round of lay offs this week, released momScore last month in connection with Mother's Day. The tool "evaluate(s) maternal and early childhood health across the country." Proud to say my home state of Connecticut ranks #2, second only to Vermont. My adopted hometown of DC ranks #20. The lowest scoring states are all in the Southern half of the country, with Mississippi coming in at the bottom.

Max Gladwell, who posts at Sustainablog as well as his own site, refers to moms are the most "formidable" of the "demographic groups gaining power through the social web." This post lists 16 "blogs and tools that are part of the nexus of social media, green living and motherhood." Max started following me on Twitter (I'm not worthy!) and I'll be returning the favor and subscribing to the RSS feed on his site so I can hear more.

Sunday, March 23, 2008

del.icio.us tags: health

PatientsLikeMe is a social network that connects patients, enabling them to share lessons learned and get the support they need. The site organizes content by individual patients, treatments, symptoms and research. The site currently has a limited number of disease-related communities, but the folks behind the site encourage you to suggest others.

Saturday, March 08, 2008

wonder of me x 100

Kristen knows she can get me to post when she tags me on a meme, although this time around she acknowledged that she might be pushing my aversion to "wonder of me" posts a bit too far.

Boy, did she ever.

I started this one the other night and needed to abandon it because it was just too gross. And, well, it's still pretty gross.

100 Amazing Things I've Already Done

This list is meant to be in response to those lists that are often generated about the things you want to do before you die to justify your time on the planet; the kind of list that will inevitably make you feel like sh*t as you look at your watch and realize that time is ticking and the top of Mount Everest isn't getting any closer to sea level.

So, yeah, this is a list of 100 thing that I have already done. Some are more impressive than others, some are about what has shaped me as a person, but all are things that I can pull out as story fodder ("Did I ever tell you about that time . . . ?"). There is a bit of starf*cking going on in here, so excuse me.

Enjoy. I tag everyone who feels the need for a little self affirmation. You can write the list in your notebook if you feel like it.

I have . . .

  1. Surfed in Oregon
  2. Won the gold medal in the National Latin Exam
  3. Climbed the Acropolis in four-inch red heels
  4. Salsa danced with Joan Baez and Desmond Tutu — at the same time
  5. Been given ride home by Jackson Browne — from his concert
  6. Talked to Maura Tierney in the bathroom at a movie premiere
  7. Earned my master degree from Harvard
  8. Driven cross-country — three times
  9. Run Rock the Vote
  10. Published a zine
  11. Published a blog — for more than three years
  12. Been a Salzburg Seminar faculty member
  13. Traveled to South Africa – twice
  14. Visited Nelson Mandela’s cell on Robben Island
  15. Dipped my toes in the Indian Ocean
  16. Met Al Gore
  17. Met Ted Kennedy
  18. Taken a class from Michael Ignatieff
  19. Done an independent study with Samantha Power
  20. Developed the strategy for the first-ever Cabinet member blog
  21. Kissed a Heartbreaker
  22. Met two members of Nirvana — and kissed one of them
  23. Seen a woman take her clothes off in front of the presidential palace in Prague
  24. Maintained a friendship with Chris for 20 years
  25. Survived and overcome
  26. Been a guest on Loveline
  27. Avoided financial ruin after a medical emergency that occurred when I did not have insurance
  28. Celebrated New Year’s Eve in Edinburgh
  29. Moved to London with no job and no place to live when I was 24
  30. Visited the Lower 9th Ward post-Katrina
  31. Written and read an original essay on NPR
  32. Walked through Sherwood Forest
  33. Trained young political leaders in Cambodia
  34. Sat in a green room with Ted Nugent
  35. Appeared on CNN as a regular political commentator
  36. Contributed to fighting the global health crisis
  37. Created a career out of doing “good”
  38. Visited Bonnie Raitt back stage
  39. Seen Badlands in a movie theater
  40. Managed to avoid ever going bowling
  41. Dropped out of college for a year and a half — and gone back to school
  42. Moved to San Francisco (from Connecticut) on a Greyhound bus when I was 20
  43. Met Bill Clinton
  44. Trained youth organizers in Mexico
  45. Been on the merry-go-round near the Eiffel Tower
  46. Been John Hughes’ pen pal
  47. Stayed in David O. Russell's guest room
  48. Gone from growing up on AFDC/welfare to now earning more than xx percent of the population (too tacky to actually write)
  49. Been offered a job by Mary Robinson
  50. Spoken at my grandmother’s funeral
  51. Had an essay published by the Carnegie Corporation of New York
  52. Attended a presidential debate
  53. Met Bono
  54. Met — and been quoted by in a speech by — Sting
  55. Seen Wilco in concert (at least) 10 times
  56. Climbed the Wicklow mountains in Ireland
  57. Gone on a road trip to the Clinton Library
  58. Talked on the phone with Katherine Hepburn
  59. Shaken hands with John Edwards
  60. Stood outside the Cambridge City Hall at 12:01 am on May 17, 2004 to congratulate the first-ever same sex couples to be married in Massachusetts
  61. Voted in every local and national election since I turned 18
  62. Attended the International AIDS Conference — in Barcelona and in Toronto
  63. Maintained a database of everyone I have met for 10 years
  64. Watched Taylor give birth to Victoria
  65. Called John McCain a “wuss” on CNN
  66. Received flowers from Martin Sheen
  67. Managed to convince foundations and companies to give projects I am working on tens of millions of dollars
  68. Been linked to by Jeff Jarvis
  69. Had one of my ads used as set dressing (Zoey's dorm room) on The West Wing
  70. Had another one of my ads used as an example of ad agency star Helen Hunt’s work in What Women Want
  71. Overcome my fear of cockroaches
  72. Had an essay published in How to Get Stupid White Men out of Office
  73. Seen Edward Norton and Catherine Keener off-Broadway
  74. Seen John C. Reilly and Philip Seymour Hoffman on Broadway
  75. Gone to an Ozzy Osborne concert — minus adult supervision — when I was 10
  76. Seen Nation of Ulysses in concert
  77. Seen Circus Lupus in concert
  78. Seen Lungfish in concert
  79. Seen Beat Happening in concert
  80. Advised three presidential campaigns on young voter outreach
  81. Managed to have the most perfectly 80’s iconic first make out session ever: behind the Space Invaders game; at the roller skating rink; wearing sneaker skates, designer jeans, a velour Izod pullover and a turtleneck with a whale on the collar; while Queen’s “Another One Bites the Dust” played in the background
  82. Interviewed Heather Armstrong and Robert Scoble
  83. Saw Jawbox in concert in London
  84. Worked on a diversity project that was cited by President Clinton's Initiative on Race as a “Promising Practice”
  85. Had Carrie Fisher/Princess Leia ask me who she needed to f*ck to get into the VIP section
  86. Exchanged emails with Pierre Omidyar
  87. Met Walter Mondale
  88. Gone to a rave in Southampton, England
  89. Visited Angkor Wat
  90. Shared "guest" status with Billy Baldwin on an ABCNews.com web chat
  91. Served as an adviser on UNAIDS project
  92. Attended four of five True False Film Festivals
  93. Become a connoisseur of single malt scotch
  94. Eaten dinner at a table next to Donald Rumsfeld
  95. Served as a BBC political commentator on that fateful 2000 election eve
  96. Worked on a documentary film project with Frances Reid
  97. Organized a mayoral debate for young people in Kansas City
  98. Driven the 101 from Los Angeles to San Francisco
  99. Stayed at the oldest hotel in Savannah, Georgia
  100. Attended one of two Dismemberment Plan reunion shows

Saturday, February 23, 2008

del.icio.us tags: politics

In a post on TechPresident, Isaac Garcia has a great analysis about how Senator Obama's campaign is an illustration of how the Long Tail theory is coming to life in politics. Essentially, just as technology has provided the opportunity for marketers to reach the most narrow niches of consumers, it has also enabled candidates to tailor their messages and engage those who may have felt left out of the process in the past - as donors, as ambassadors and as voters.

The Kaiser Family Foundation's health08.org has pulled together an "issue spotlight" on global health and HIV/AIDS, providing an analysis of Clinton, Huckabee, McCain and Obama's positions on what they will do as President to wipe out poverty-related disease in the developing world. You may have made your decision or cast your vote already, but if this issue matters to you as much as it does to me, we still need to be prepared to hold the new administration accountable to their promises when the dust finally settles.

Update: Matthew Kavanaugh is asking a valid question at The Huffington Post about the current crop of candidates' commitment to the global HIV/AIDS pandemic. In the midst of reauthorization of the President's Emergency Plan for AIDS Relief (PEPFAR), where are their voices?

Saturday, December 22, 2007

wrapping things up

Kristen posted her annual End of Year meme and tagged me to do it as well. I have been posting these now for a couple of years, always prompted to do so by Kristen.

1. What did you do in 2007 that you’d never done before?

2. Did you keep your new year’s resolutions, and will you make more for next year?

I don't make new year's resolutions. I make resolutions every day to take care of myself physically and emotionally. There is a reason I make these resolutions every day: I don't keep them.

3. Did anyone close to you give birth?

A whole bunch of folks had babies these year, but the person to whom I am closest was Amy, who gave birth to Jonas Aidan -- who resembles an old Chinese man more than most babies do -- on November 8.

4. Did anyone close to you die?

no

5. What countries did you visit?

I did less international travel in 2007 than I did in 2006. I spent a few days in Switzerland (Geneva) and a few days in England (London) in March and, in October, I went to Greece. All trips were work related and two out of three of those trips were with the great Johnny B.

6. What would you like to have in 2008 that you lacked in 2007?

  • a social life that extends a little bit further than drinks at Smith & Wollensky
  • patience, but I'm not holding out any hope
  • hope for the political future of our country

7. What date from 2007 will remain etched upon your memory, and why?

I have a few . . .

I'll always remember June 16, the day I visited my grandmother after her apartment fire, because it will be difficult to ever get the sight and scent of her apartment out of my mind, as well as the sadness of seeing her on the balcony of her temporary living space, looking lost -- and old.

On a happier note, I'll remember April 8, the day Andrew and I met up at the Sackler. He was giddy (as much as Andrew can be giddy) about the pottery and I was giddy about spending time with him again.

Finally, I'll remember October 6, the day John and I explored Athens with Michael Darragh. I knew I was getting ready to move on, but I loved seeing something new with John, who has helped me to see so many other new things, often inside myself.

8. What was your biggest achievement of the year?

I really do think I grew as a manager. I wasn't always "nice," but I was always incredibly invested in giving my team the opportunity to strengthen their skills and, therefore, their value to the group. I think that's rare. Rarer than it should be.

Beyond that, and despite the fact that not being able to work with John every day SUCKS, I see the new job I will be taking on in 2008 as a big achievement because it is getting me back into advocacy work.

9. What was your biggest failure?

Folks, I ate like a pig.

10. Did you suffer illness or injury?

This year, it became pretty clear to me that I am getting old. Everything is falling to pieces. No major illnesses or injuries, but a general state of decay has set in. Lordy, it ain't pretty.

11. What was the best thing you bought?

I love the brown jacket I bought at Anthropologie, but my Nikon D40x makes me swoon. Just ask Wyatt.

12. Whose behavior merited celebration?

Al Gore for keeping up the fight, John Edwards for his populist message, Elizabeth Edwards for telling cancer (and her critics) to f*ck off, Wayne Coyne for continuing to have more fun than the rest of us, Jon Corzine and Martin O'Malley for fighting the death penalty, Heather Armstrong for her persistent honesty and humor. There are probably others. There are some good folks out there.

13. Whose behavior made you appalled and depressed?

How about appalled and angry? Ann Coulter is, and always will be, scum. She's just embarrassing.

14. Where did most of your money go?

eating out and clothes

15. What did you get really, really, really excited about?

I don't think I got excited enough this year, but I got excited when I got the invite to go to Greece and I got excited when I met the folks with whom I will be working in the new year.

16. What song will always remind you of 2007?

Don't give me a hard time, but Not Ready to Make Nice by the Dixie Chicks had the right amount of righteous indignation to get me to sing along every time I heard it. It was released in 2006, but I bought the CD this year.

17. Compared to this time last year, are you

  • happier or sadder? sadder
  • thinner or fatter? definitely fatter
  • richer or poorer? richer

18. What do you wish you’d done more of?

I wish I had taken care of myself more: emotionally and physically.

19. What do you wish you’d done less of?

  • read about Britney Spear's persistent downward spiral
  • updated my status on Facebook

20. How will you be spending New Year’s?

I think I will be at Julia's.

22. Did you fall in love in 2007?

I was already there.

23. How many one-night stands?

zip

24. What was your favorite TV program?

I love How I Met Your Mother, although Kid Nation was a sincere source of fascination.



25. Do you hate anyone now that you didn’t hate this time last year?

I don't hate people. I dislike a few, but they're irrelevant.

26. What was the best book you read?

Homicide By David Simon and The Assault on Reason by Al Gore

27. What was your greatest musical (re)discovery?

I love Grinderman. That's damn good car music.



28. What did you want and get?

a reason to leave where I was

29. What did you want and not get?

a reason to stay where I was

30. What was your favorite film of this year?

I don't think I went to the movies the entire year. I just don't enjoy it anymore. But my favorite rentals were a cheery group: Little Children, Dogville, Half Nelson, The Chumscrubber, In the Heat of the Night, Sherrybaby, A Scanner Darkly, The Baxter, The Statement and Inside Man.

31. What did you do on your birthday, and how old were you?

I honestly can't remember (what I did -- I am well aware of how old I am.) I'm at the point where I'm not a big fan of birthdays.

32. What one thing would have made your year immeasurably more satisfying?

I could have used some more time with friends and less time working.

33. How would you describe your personal fashion concept in 2007?

This was the year of the headband.

34. What kept you sane?

That's awfully presumptuous of you . . . I guess Steve did the best he could.

35. Which celebrity/public figure did you fancy the most?

I watched every episode of Homicide this year and I fell in love with Kyle Secor (aka Baylis). Someone needs to give that man (and Andre Braugher) a job.

36. What political issue stirred you the most?

There's no one political issue that stirs me. I get riled up pretty easily day to day and there have been points throughout the presidential campaign where I was ready to impale myself, usually because of some ridiculously folksy thing Mike Huckabee said or because I can not believe that anyone would give serious consideration to Rudy Giuliani as President of the United States. But, I was thrilled with the recent Supreme Court decision to enable lower court judges not to follow federal sentencing guidelines for crack offenses, addressing the longstanding disparity between sentencing for crack cocaine and powder cocaine offences. That was one of those, "Wait, someone actually wants to right an injustice?" moments that comes so infrequently.

37. Who did you miss?

I missed Chris. But I took care of that, didn't I?

38. Who was the best new person you met?

I really like Cooper. He tells great stories (I like stories involving his son in which he adopts a voice that sounds like Beavis -- or Butthead, I can't tell -- with a lisp) and, in general, is just a f*cking charming guy. Plus, he was apparently a rock star in a former life. I hope we stay in touch . . . and I wish him the best.

39. Tell us a valuable life lesson you learned in 2007.

Sometimes doing what's right for you hurts more than doing the wrong thing. (I think I knew that already.)

40. Quote a song lyric that sums up your year:

I try to keep the house nice and neat
I make my bed I change the sheets
I even learned how to use the washing machine
But keeping things clean doesn't change anything
("Hate it Here" by Wilco)

I'm tagging Kaitlyn, Qui and Samantha, although I am not sure any of them will do it.

Thursday, November 22, 2007

del.icio.us tags 11.22.07

Happy Thanksgiving, folks. A few links that I have tagged on del.icio.us over the past week or so. Stuff yourself.

Social Networks
Militaryplanet.com is a new social network for members of the military -- past and present. According to the press release quoted by 901am, the site was developed in part due to the military's decision to ban service members from using other social networking sites like MySpace. If anyone has the chance to check it out, I would be interested in hearing about the size of the community, the conversation and the features.

Digital Advocacy
Witness has launched "The Hub." The aim of the site is to allow individuals and groups to gather attention to human rights issues around the world by posting video, audio and photos; sharing educational and advocacy materials and to connect with others who are concerned about human rights violations. The site is in beta and, according to their "about" page, Witness has a number of additonal features that they will be rolling out on the Hub in the near future. They're looking for ideas and volunteers, so consider giving them some of your time.

Change.org has launched a social network for nonprofits and their supporters on its site. Nonprofit groups can use their profile to raise money, post videos and photos, list calls for action and blog; while visitors to the site can sign up as a supporter, review, share their desire for "change," or comment on the nonprofit. (Thanks to TechCrunch for the news.) So, do you think these nonprofit organizations have a bigger impact on sites like Change, where people are coming because they already care about the issues, or on sites like Facebook, where the reach may be broader, but the users may not have changing the world on their mind?

Janet Meiners at Marketing Pilgrim
covers new research from the Center for Marketing Research that says that a larger percentage of nonprofit organizations than businesses are using social media. Almost half of the nonprofits in Forbes' list of the top 200 charities say that they use social media as part of their fundraising efforts. What is it that puts nonprofits out front? Is it their need to utilize communication tools that raise awareness without raising their budgets? Is it about being less concerned about the impact of transparency? Is it the age of the folks running nonprofit organizations? In her comments, Janet indicates that she thinks the justification is money, while others suggest that it is passion and simply the respond to a demand from an increasingly socially conscious public that is putting nonprofits on the cutting edge.

Politics
Compete has announced the launch of Candidate Facetime, their solution for measuring the effectiveness of presidential candidates' efforts to reach voters via social media. The metric used is the amount of time spent on each candidate's official web site. I guess, in the end, that's where the candidates want voters to end up (ideally, to make a donation), but what about the time spent with the candidates elsewhere within social media? Is it that they don't think it is as valuable or is it just too difficult to measure? What about a metric that combined time on the candidate's web site with the volume of conversation about that conversation within social media, along with their search visibility and links into their official sites? Any other metrics worth considering?

Search
Searchboth.com lets you search both Google and Yahoo, Expedia and Orbitz or YellowPages.com and SuperPages.com at the same time in order to compare results.

Health
I'm not sure how long it has been around, but DiabeTeens is a community site for young people with diabetes over at HealthCentral.com.

The Ladies
I'm not thrilled about it, but, according to Comscore (and Mashable), CafeMom is the number one destination for women online. (I'm not thrilled because I think most marketers presume that women are mothers or want to be mothers and seem to forget that those of us who don't fall into that group probably have a little disposable cash that they might want to get their hands on.)

Worldwide, more than 2/3 of Facebook users are women. In the U.S., 60 percent of Facebook users are women. (Thanks to TechCrunch, once again.)


Sunday, November 04, 2007

del.icio.us tags 11.4.07

There's a new social network for caregivers, Agingcare.com (via 901am). The launch coincides with National Family Caregivers Month, a chance to acknowledge the efforts of the more than 50 million family caregivers. Agingcare.com features expert advice, news, polls and products. The "community" section of the site features message boards on everything from legal advice to hospice care to national and local events.

danah boyd is backing up her hypothesis that there are class differences between MySpace and Facebook users with some data, courtesy of Eszter Hargittai from Northwestern University. The debate is not over.

Saturday, October 27, 2007

del.icio.us tags 10.27.07

Politics

Mashable pulled together 30+ resources (online) for U.S. Politics after getting the suggestion to do so from one of their readers. It's not exhaustive, but there are a few good things in there.

Marketing

BL Ochman at Marketing Profs gives a fellow PR hack a pat on the back for their blogger outreach effort. It's not tough, folks. She liked the pitch because 1) the writer reads her blog, he follows her on Twitter, he made reference to a post she had written on bad blogger outreach, he gave her information in an easy to understand way (bullet points, plenty of white space, "organized and brief," giving her the content in the email versus making her look for it), he was funny, he was timely and he told her she could cut and paste his email into a blog post.

Books

Our local DC PBS station, WETA, has launched a new book blog, Author Author, featuring author interviews and book reviews.

Search

LivePlasma aims to help you to identify new music and movies based on your current interests. Of course, Amazon has been doing this for years, but not with pretty graphics. My favorite movie of all time is Badlands by Terrance Malick, which, according to LivePlasma, means I should also like movies by Sofia and Francis Ford Coppola (I do), Francois Ozon (sure), Robert Altman (hell yeah), Antonioni (for the most part), Renoir (okay), Polanski (yep), Welles (uh huh), Ford (I'm not making the connection -- stunning landscapes?), Fellini (sure), Visconti (I don't believe I have had the pleasure), Sydney Pollack (ehhh) and Yasujiro Ozu (not familiar).

The one that started it all -- Badlands.

Digital Influence


For all of us who are desperate to point out that social media actually has a purpose beyond keeping geeks busy and indoors, there are quite a few folks posting in the past couple of days about the role that it has played in the fires in Southern California -- like this post from Fast Company, which cites the value of Twitter and Google Maps for residents in communicating information about the location of the fires and resources for evacuees.

Health

HealthSquare.com is HealthCentral.com's "prescription drug destination." They are targeting consumers, but are health care providers reading? Pharmas will inevitably want to know. If the advertising folks can prove they are, they'll be in good shape. And provide information for the 50+ set on your advertising page. This is one industry where growing old makes you more attractive to marketers (comes via 901am).

Social Networks

Friendster apparently still has lots of friends in Asia and, while they are a smaller group, social network users in Latin America stay on longer (there's a bad t-shirt in there somewhere). Research from ComScore says that social networking is already twice as big outside of the U.S. and growing fast (posted to Mashable).

Monday, September 17, 2007

del.icio.us: health

John Bell asks, "Are we getting somewhere?" with health care and social media? His post sounds like it's a mixed bag 1) We've got more Web 2.0 companies jumping into the health care space because 2) more patients are relying on social media for their health information. But 3) the pharmas -- excluding a couple of folks -- aren't moving very quickly and 4) the HMOs are barely moving at all. The thing is, 5) they need to change because the world is changing around them.

(photo by John Vachon for the Farm Security Administration from Shorpy, available for purchase)

Kristen Nicole at Mashable shares the news that OrganizedWisdom has launched a health search engine with human brain power behind it that, according to Nicole, avoids the trap of other search engines "that can lead you on a wild goose chase providing links with irrelevant data and leaving you to decipher what’s credible and what’s not." OrganizedWisdom's Wisdom Cards (like this one for Heart Disease), which organize content around a specific disease are great, including everything from government web sites to consumer generated content. Folks will surely be tripping over themselves to get listed as a resource on these cards and, luckily, you can recommend a link and, even better, share the card with others via email. (I'm with you, Kristen, as far as the value of creating something that folks can embed and, um, how about an RSS feed for updates????!!!)


Organized Wisdom's blog sent me to this article in The Economist about "Health 2.0" from their September 6 print edition. According to the article (which cites Jupiter), more than 20 percent of American Internet users have created some kind of health-related user generated content. The article attributes the "explosion" of content to increased broadband access as well as the growing importance of word of mouth from peers as a resource for health information -- particularly for "lesser known illnesses" and the fact that doctors just can't know it all, particularly about the patient experience. The concern, says the article, is that the drive to learn more about their ailments has led people to disregard privacy issues and to has left them vulnerable to misinformation. But for those facing a scary situation, the former may be something they are willing to risk and, as far as the latter, the wisdom of the crowd has made this a relative non-issue.

BTW: Hillary Clinton will be unveiling her plan for universal health care today. Let's hope she gets it right this time -- for everyone's sake.


Sunday, August 05, 2007

the real power of mom bloggers

WhyMommy at Toddler Planet was recently diagnosed with inflammatory breast cancer. She posted about her diagnosis and asked her readers to share the post -- literally cut and paste it to their own blog -- to spread the word about this easily misdiagnosed and very aggressive form of cancer.

In the past week, at least 60 people have done what WhyMommy asked them to do, spreading the message to their own readers. Those without blogs have emailed it to their friends and family, spreading it even further.

This is an amazing illustration of the organic power of social media. This isn't a manufactured campaign. This isn't about asking a mom blogger to write about something that doesn't matter to them -- whether it's a cause that doesn't touch their heart or a product that doesn't rock their world.

This is about a real women -- and the women who trust her -- having an impact and, hopefully, saving lives.

Here is the full post (share it with the women you love):

We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?

I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.

Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.

Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.

There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.

Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.

You don’t have to have a lump to have breast cancer.

Sunday, July 15, 2007

del.icio.us tags 07.15.07

Politics 2.0

Earlier this month I posted about how Mike Connery over at MyDD was a little concerned about the fact that young progressives aren't engaging with political blogs. Apparently, folks weren't pleased and, alas, Connery came back last weekend to respond to the critics, attempting to answer the question, "WHY do youth groups need to engage the blogosphere?" as well as giving advice on how these same groups can make better use of blogs they already have.

Mother Jones has dedicated their latest issue to how technology is changing politics and Joe Trippi, Howard Dean, Jimmy Wales, and (sexy) Larry Lessig -- among others -- pipe in with their own perspective. Remember the Iowa "Dean Scream" video that helped to bring the campaign down? Well, if YouTube was around in 2004, says Dean, "We would have had something out the next day, saying, 'This is what really happened'."

The Kaiser Family Foundation has launched Health08.org, dedicated to the issue of health care in the 2008 presidential campaign.

Search

The Economist reports on the increasing popularity of vertical search engines -- among users as well as marketers. While two-thirds of Americans who use search engines to research health issues use general engines like Google and Yahoo!, vertical engines that are dedicated to health (like Healthline and Healia) are growing in popularity and drawing in the healthcare industry, which spent approximately $14 billion in online marketing in 2005 in the United States alone.

South Koreans count on Naver for their search results, with real humans -- and not algorithms -- churning out answers.

Transparency

Take it off. Take it all off. From back in March, Clive Thompson at Wired thinks it's worth opening up the curtains and letting the customer in.

Monday, June 25, 2007

del.icio.us tags 06.25.07

Breast Cancer Ain't Easy - Over the weekend, Houtlust shared this social marketing ad about protecting yourself from breast cancer -- done by Saatchi & Saatchi for the Breast Cancer Welfare Association Malaysia. I started off as a fan because of the simplicity of its message, but am wondering now if it's a little too "blame the victim" versus empowering women to take steps to ensure their health. I'd love to hear your opinion.

George, I am Your Father - John shared this latest bit of research from Harris Poll about newspaper readership in Europe, Australia and the U.S. Guess what? It's down, with folks saying it's everything from not having the time (yeah, let's talk about that) to thinking that the paper is too biased (big in Spain and the UK). Me? I'm still getting the paper seven days a week. Does anyone want to talk about the series in the Post about Vice President Cheney? It's like watching Episodes I-III of Star Wars to discover what the hell caused Darth Vader to become such an evil prick.

Tuesday, June 19, 2007

de.icio.us tags 06.19.07

Guess Who's Coming to Dinner? - Jessi Hempel at Business Week's Next: Innovation Tools & Trends likes what Obama is doing with online video, specifically that he's not doing what Hillary Clinton is doing: treating online video like "traditional tv." But Obama, says Hempel, is no David Cameron, who I was giving my love to (for his use of social media, not for his politics) back in October 2006.

Not a Joiner - Also from Business Week, take a look at what U.S. online users are doing with their time. I like the breakdown of user types because it demonstrates that we're not all getting the same thing out of social media: creators, critics, collectors, joiners, spectators and inactives. I'm a creator, critic, collector and spectator myself. And you?

Online Health Fair - RevolutionHealth.com has launched their first "health fair," featuring health-related nonprofits, to which Revolution will make a donation based on the number of clicks through to their "booth." The pay off is a little lame, with the booths not particularly well-designed and the user experience falling flat. (Did Revolution give the groups a template and let them do their thing? Maybe a little quality control would have done the trick.) (Thanks to 901am for the heads up.)

Glam-orous Life - iVillage no more. Glam is now the number one social network for women. Yet another club that I have no interest in joining (via Mashable).

Monday, June 18, 2007

del.icio.us tags 06.18.07

Social Pharma - GSK is using social media to promote its new weight loss drug, alli, and has launched a corporate blog, alliConnect. Steve Burton, who is "on the team" at GSK (not clear what he does -- just checked, he's the VP of the weight loss division) has used the drug himself and, in a moment of too much information, shared with us that, yes, he did indeed experience one of the drugs less than glamorous side effects. (I won't go into details, but Burton affectionately refers to it as his "oops experience.") As John Bell points out in his post on the topic, the message boards on the product site are where the real action is -- including the message in bold about reporting adverse effects ("To report the occurrence of treatment effects and/or any adverse events related to alli, you may call our customer service line . . . ).

Oh Canada - 901am has some news on our neighbors to the north: they love their social media. The numbers look pretty similar for the younger set, but, according to TNS Canadian Facts, 60 percent of Canadians in their 30's, 45 percent in their 40's and about 33 percent in their 50's have visited a social network site. So, are they going there to check up on their kids or to create a profile of their own? Not clear.

Monday, April 30, 2007

del.icio.us tags 04.30.07

Leave Ben Alone - Ben McConnell at Church of the Customer Blog does not want you to "pitch" him. At least not like you have been. My favorite? "Feel free to add the following hilarious videos to your blog. I can imagine that your readers might get a kick out of them. And, of course, if you have any questions, please don’t hesitate to be in touch."

It Won't Be Televised - The Revolution has started and, according to Mashable, it may just overthrow the establishment (aka WebMD). Okay, maybe I exaggerated that bit about overthrowing WebMD, but work with me. I'm a little unsure about uploading my medical records to the site, however. Ever since getting turned down by Kaiser Permanente for self-employed insurance because of lower back pain (which, I believe, 75 percent of the population has), I'm not too keen on letting the world know about what ails me.

Wacky Librarians - The Library of Congress has launched a blog and poses a question that I have yet to hear anywhere else (which is due, in part, to the fact that no one but the Library of Congress would mull this one over), should blogs be assigned an ISSN number?

Speak Out HERE, Not THERE -
Progressive U is encouraging young people to speak their mind. But I am not so sure why they chose to use disdain toward MySpace and Facebook as a marketing tool.