Sunday, August 05, 2007

the real power of mom bloggers

WhyMommy at Toddler Planet was recently diagnosed with inflammatory breast cancer. She posted about her diagnosis and asked her readers to share the post -- literally cut and paste it to their own blog -- to spread the word about this easily misdiagnosed and very aggressive form of cancer.

In the past week, at least 60 people have done what WhyMommy asked them to do, spreading the message to their own readers. Those without blogs have emailed it to their friends and family, spreading it even further.

This is an amazing illustration of the organic power of social media. This isn't a manufactured campaign. This isn't about asking a mom blogger to write about something that doesn't matter to them -- whether it's a cause that doesn't touch their heart or a product that doesn't rock their world.

This is about a real women -- and the women who trust her -- having an impact and, hopefully, saving lives.

Here is the full post (share it with the women you love):

We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?

I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.

Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.

Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.

There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.

Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.

You don’t have to have a lump to have breast cancer.


Whymommy said...

Absolutely right! The numbers are up to 250 blogs now, and I am just amazed. My goal is to continue to spread the word, so that when the next mom (or dad, or grandma, or young girl) sees something funny like this, perhaps they'll know to ask their doctor about it right away.

(I'm already getting reports of people doing so).

Thanks for the post!

abf said...

That's great that the post is getting out there. You should be proud of what you are doing. Glad to be able to participate.